But, I'm Good at Everything!

Good Afternoon Friends and Family...

I only have a few minutes to write I have an appointment to go to, nope.  Do I have a friend to meet, no.  It's not really anything particularly "time sensitive," BUT in brain storming with my husband about how to keep stress levels low, remember to take pills properly, go to bed at a healthy hour and have plenty of time to unwind and Seizure the Day.....we've decided that consistency is not only a good thing but really, a necessity. 

Especially since I'm unemployed right now, I look at my to do list and have a hard time deciding where to start; prioritizing basically.  A few years ago I would never had admitted that time management definitely isn't my strong point but....HELLO Callie!?  That's just not your best trait.
Confession complete.   

When I was 11 and diagnosed with epilepsy, I wasn't really sure what was going on.  I think it was partly because of my age that I was pretty clueless.  As I grew older I began to want to hide my epilepsy from my friends.  I'd be late to school or miss school because I had a seizure that morning and I'd respond to, "Where were you" (that my concerned/nosy friends asked) by saying, "Oh, I wasn't feeling well, I'm fine now though."  I was so afraid of being uncool.  While I knew I had epilepsy, I just couldn't admit that I was "different."  

As my self esteem rose with age, I was fine with being, "different" but I didn't particularly want to talk about it in depth.  I went to fundraisers, I told my friends about it but only broached the subject.  College...hmmmn...a mixture of all feelings.  I knew I had epilepsy, would admit it to friends but certainly didn't consider myself, "different."  I didn't need to treat myself differently...I could stay up until 4am (usually not studying). I didn't need to bring my pills with me so I could take them on time; it'd be weird to ask for a glass of water so I can take my pills while I'm at a house party.  I could loft my bed;  I wouldn't fall off if I had a seizure.  I didn't need to wear a medical bracelet, "No, those things are hideous!"  Please note, I always wear a medical bracelet now. 

Thankfully, I've realized how absolutely ridiculous my thoughts and behavior regarding my epilepsy were at that time.  If you've not figured out by now, I'm almost proud of my epilepsy.  I guess more proud of who I've become despite my challenges.  Now, I just can't shut up about it! 

While I've not encountered this with my family, many parents have a hard time admitting their child has epilepsy; that they're different.  Oh, they are supposed to be perfect.  "She's supposed to wear a hair bow, not a helmet!  The only helmet he's going to wear was a football helmet!"   (some people, mostly children have to wear a helmet, as not to injure their head/brain if they fall because of a seizure).  Though I'm not a parent, I do imagine it's hard to understand and accept that your child is going to have challenges and, in turn, you will too.  One of the most beautiful poems written by the mom of a boy with autism and epilepsy is called, "Welcome to Holland."  Whether you're a parent, a person with epilepsy or love someone with epilepsy I really encourage you to read it.  (see the link below)

It doesn't have to be epilepsy, but today I challenge you to Seizure the Day by admitting something you struggle with, brainstorming on how you can overcome that challenge and offering an encouraging word to someone you know that is struggling. 

I'm off to Seizure the Day and YAY!, I'm still on schedule ;-) 

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