Whoa! What a Rush....sharing my journey as a woman with epilepsy!

I just finished a 45 minute presentation to a group of 150 healthcare professionals at the American Epilepsy Society conference. Ahhhhh! Freak out, cry, give it all I've got. YES; all of the above! What an amazing honor to speak with these folks. They've done years of studying, seen so many patients and their research never ceases. And me, Callie Sharon, menial banker got to share my personal "case study."

So my journey continues, with new supporters, advocates and brilliant professionals rooting for me. 

Life is good; seizure the day! 

Callie Sharon

Callie's First Video EEG!

Hello y'all!

I'm joyously writing today for two reasons: 
  1. Today is Purple Day, a dedicated day where people worldwide spread awareness about epilepsy. Of course, we can spread epilepsy awareness everyday, but it is good that we have a dedicated day for that too.
  2. As you can read about in previous Seizure The Day entries, I recently had my first Video EEG! My husband Jake interviewed me so we could share my experience.  Below is my second Seizure The Day video, Callie's First Video EEG!





Well, as you can see I am very hopeful and excited about what's to come with my epilepsy journey.

I'm sure you have more questions about Video EEGs and epilepsy in general.   Please feel free to contact me here.  If I don't know the answer, I know some great resources and we will find out together!

Now let's get out there and spread some epilepsy awareness!

Seizure The Day!
Callie

P.S.  Below is a transcript of this video. My husband, Jake Sharon, watched the video, and typed up all my words.  

Excited to Have a Seizure... HUH?!

For almost 2 years now, my epileptologist has been suggesting that I participate in a video EEG. All kinds of things have gotten in the way though. Ultimately, I think I was my own biggest road block Perhaps I blamed it on work scheduling or lack of money or made a variety of other excuses but I'm finally able to admit that I simply was not mentally or physically "prepared" for what the very near future holds. 

I'm not exactly sure what has "flipped the switch" but it's on in full force and I'm EXCITED! Sure, there are fearful undertones; the fear of the unknown, some "what if's" involved. But in general, I'm ready to have a bunch of electrodes attched to my head, look grundgy, probably feel kind of icky for a large portion of the time and have family and friends witness multiple seizures. 

I've never been excited to have a seizure until now. Yep, I'm looking forward to having seizures while I'm in the hospital. I'm so hopeful that this experience is going to give my doctor the answers he's looking for. My epilepsy has changed so much over the years and I have had very few new tests done. This is no ones fault but my own; remember, I'm my own road block. That said, the treatment has been a little bit of a shot in the dark... a well educated shot in the dark. 

I check into the hospital on January 19th, the day we celebrat Dr. Martin Luther King Jr. There is no coincidence here. Dr. King and I both have dream; his was to be equal, mine to be seizure free! We've kicked down our roadblocks. 

What's your dream... what's in your way?